Mental Health Services for People with LD

A Vision for Change
Final Report of the Expert Group on Mental Health Policy (January 2006).  Chapter 14 - pages 124 to 134 - refer to Mental Health Services for People with Intellectual Disability.
  • Speaking your Mind:  This first report, presents the results of the Expert Group's consultation with service users, their families and carers, voluntary groups, professional groups and other service providers.
  • What we Heard:  The second report presents the results of a survey conducted by the Irish Advocacy Network.
A report into mental health awareness training in Scotland and the relationship between mental health and disability (By Jo McFarlane and Scottish Human Services - SHS, 2000).
Psychological interventions for severely challenging behaviours shown by people with learning disabilities - Clinical Practice Guidelines. The British Psychological Society (August 2004). ISBN: 1 85433 402 6
This website is designed for anyone with an interest in mental health or learning disabilities. It currently has 10,000 plus members sharing information about more than 8,500 news items, 2,500 events, 3000 websites and 4,000 organisations.   This site is owned and run by the Mental Health Foundation (UK) and the Foundation for People with Learning Disabilities (UK). 
The report of the UK committee of inquiry into meeting the mental health needs of young people with learning disabilities aged from 13 to 25. (2002) (Report Summary: Updates: Volume 4, Issue 8. Foundation for People with Learning Disabilities, December 2002).  The full report of the committee of inquiry into meeting the mental health needs of young people with learning disabilities is available from the Foundation for People with Learning Disabilities, Price £27.50 ISBN: 1 903645 38 7, Pages: 114.
Count Us In aims to promote the mental health and emotional well-being of young people with learning disabilities. The report addresses ways of supporting young people to be emotionally strong, through education, support for young people with learning disabilities and their families, friendships and advocacy. Issues such as bullying and abuse are also examined. It also explores ways services should work together to respond to the needs of those young people who experience mental health problems.

Estia Centre

The Estia Centre is a training, research and development resource for those who support adults with learning disabilities and additional mental health needs. The Estia Centre is based on the Guy’s Hospital Campus and is an integral part of local services for people with learning disabilities provided by the South London & Maudsley NHS Trust. The Centre is also an Academic Section of the Institute of Psychiatry of (Division of Psychological Medicine and Health Service Research Department) King’s College London. The Estia Centre aims to support the development of a competent workforce, from support staff to experienced managers and from a variety of services. By working in close collaboration with clinical services, the Centre aims to improve the care of people with learning disabilities, especially those with additional mental health and challenging needs through evidence-based practice.

EU Green Paper: Improving the Mental Health of the Population
Towards a Strategy on Mental Health for the European Union - Brussels, 14.10.2005 - COM(2005)484.  The purpose of this Green Paper is to launch a debate with the European institutions, Governments, health professionals, stakeholders in other sectors, civil society and the research community about the relevance of mental health for the EU, the need for a strategy at EU-level and its possible priorities.  Further information is available on the EU Public Health website.

Green Light for Mental Health : A Service Improvement Toolkit (UK) (2004)
Green Light is a framework and self audit toolkit for improving mental health support services for people with learning disabilities in the UK. It provides a picture of what services should be aiming to achieve, including quality outcomes, and a self assessment checklist. It is aimed at Mental Health Local Implementation Teams and Learning Disability Partnership Boards. (Foundation for People with Learning Disabilities, May 2004).  Green Light has two parts. The two parts go hand in hand and can be downloaded from the Valuing People Support Team website:

  • Download Part A in PDF Format, 58 pages. Part A is a guide to the pack itself and to improving services and support for people with mental health problems who have learning disabilities.
  • Download Part B in PDF Format, 54 pages. Part B contains some tools which will help you work out how well you are doing in your local area.
Mental Health Act 2001 (Ireland)

Mental Health Act 2001, Bar Review
February 2005, Jenny Bulbulbia BL, Learning Disability Section

Mental Health Commission
The Mental Health Commission is an independent statutory body established under the Mental Health Act, 2001.
  • Quality in Mental Health - Your Views
    Report on Stakeholder Consultation on Quality in Mental Health Services. Mental Health Commission Ireland (January 2005).
    The Mental Health Commission plans to develop and implement a quality framework for mental health services in Ireland. The framework will be used by the Commission to support continuous improvement in the quality of mental health services. As a first step in developing the quality framework, The Mental Health Commission engaged Prospectus to design and manage a consultation process aimed at gathering the views and perspectives of all stakeholders as to what constitutes quality in mental health services. The quality framework will build on and encompass these different perspectives. This report describes the findings from the consultation process, conducted over the period May – August 2004.
  • The Mental Health Research Network is a strategic initiative, established by the Mental Health Commission, to support and promote national and international research links. This new and exciting innovation aims to connect the mental health research community, to share the valuable resource of knowledge and to create an awareness of the skills and expertise which are available to all researchers.  The Commission invites all stakeholders within the mental health sector with an interest in research, as well as international mental health researchers, to register with the network.
  • The Irish Mental Health Research Database aims to record all mental health research, published or unpublished, in Ireland post 2000. The development and expansion of this database will tap into a rich vein of information and move research from the periphery to the centre of service delivery and policy development within the mental health sector in Ireland.  The Mental Health Commission invites you to submit details of current or completed research.

Meeting the Mental Health Needs of Adults with a Mild Learning Disability
(Royal College of Psychiatrists, London - Approved by Council: April 2003.  Due for review: 2006)

Models of Service Provision to Adults with Intellectual Disability with Co-Existing Mental Illness
Models of Service Provision to Adults with an Intellectual Disability with Co-existing Mental Illness
(Dual Diagnosis) August 2002, Developmental Disability Unit, School of Population Health, The University of Queensland, Funded by Queensland Health and The Department of the Premier and Cabinet.
The Developmental Disability Unit, (School of Population Health, The University of Queensland), developed the report on behalf of an across government working group with representatives of the three Departments. The aim of the report is to provide a review of the available evidence about suitable models for providing services to individuals with a dual diagnosis, who require the services of more than one Department. It contains an examination of published literature, and examination of approaches used in a number of other selected jurisdictions, via material available on the internet and through personal communication with researchers and service providers in a number of western nations.  The review will inform Queensland Government departments about appropriate models of care, and assist Queensland service providers to develop best practice models of care for these very disadvantaged clients, which are consistent with international best practice.

National Association for the Dually Diagnosed
NADD is the leading North American expert in providing professionals, educators, policy makers, and families with education, training, and information on mental health issues relating to persons with intellectual or developmental disabilities.

Northern Ireland Association for Mental Health
The Northern Ireland Association for Mental Health strives to: Provide services to the highest possible standard of excellence to people with mental health needs; Press for high standards in the provision of mental health services; Promote mental health through the provision of information, education and other initiatives; and Partner with other interested agencies and parties, nationally and internationally.
  • The Bamford Review of Mental Health and Learning Disability (Northern Ireland). The final report, which examines the law, policy and provisions which affect people with mental health needs or a learning disability in Northern Ireland, is due to be published in May 2006.
  •  The Review of Mental Health & Learning Disability (NI):  A Strategic Framework for Adult Mental Health Services, June 2005.  This first report from the Review set out a vision for adult mental health services for the next 15 to 20 years (273 pages).  An Executive Summary of the report is available here.
  • We have a dream…  Messages from people with a learning disability to the Review.  The Equal Lives Group was set up to give advice to the Review of Mental Health and Learning Disability (NI). The Review is made up of people who are writing a report for the Government about how people with a learning disability should be supported in Northern Ireland.   The members of the Equal Lives Group wrote this report after meeting with many people with a learning disability and getting ideas from other groups in Northern Ireland.  (January 2004)
  • Focus on Families: Messages from family carers.  This report has been prepared to highlight issues that family members who support a person with a learning disability have said need to be addressed in the Review of Mental Health and Learning Disability (NI). (January2004)
  • Challenges of Complexity: Issues from People with a Learning Disability and Complex Needs, Their Carers and those who work closely with them.  This report was prepared by a group of professionals working with adults who have a range of learning disabilities.  They consulted with service users, families, staff and other advocates, and have highlighted some specific issues relevant to people with a learning disability and complex needs and their families. (2004)
  • Consultation for people with a learning disability and for carers on the Committee’s draft report ‘Equal Lives: Review of Policy and Services for People with a Learning Disability in N. Ireland’.
Proposed Model for the  Delivery of a Mental Health Service to People with Intellectual Disability
Occasional paper OP58, Irish College of Psychiatrists, Dublin, July 2004. 
Recommendations can be viewed here.
Submission to the Expert Group on Mental Health Policy
Irish College of Psychiatrists, December 2003

The Judith Trust
The Judith Trust, founded in 1997 in the UK, aims to improve the quality of life of people who have both learning disabilities and mental health needs.

Valuing People
Valuing People: The UK white paper Valuing People: A New Strategy for Learning Disability for the 21st Century was published on 20 March 2001. It is the first white paper on learning disability for thirty years and sets out an ambitious and challenging programme of action for improving services.
  • The World Health Report 2001:  Mental Health: New Understanding, New Hope (169 pages)
  • The WHO Resource Book on Mental Health, Human Rights and Legislation brings together important information on international human rights standards related to mental health. It provides practical guidance on key issues that governments need to consider and incorporate into their national mental health laws, as well as useful strategies to facilitate the development, adoption and implementation of the laws (2005).  (199 pages).
  • Human Resource and Training in Mental Health:  This Module provides a comprehensive approach to human resources and training for mental health in countries. It includes guidance on the development of a human resource policy for mental health and provides a coherent framework for workforce development (2005).  (142 pages)
  • Promoting Mental Health: Concepts, emerging evidence, practice (Full Report).  The Report aims to bring to life the mental health dimension of health promotion. Like health promotion, mental health promotion involves actions that allow people to adopt and maintain healthy lifestyles and create living conditions and environments that support health. This book describes the concepts relating to promotion of mental health, the emerging evidence for effectiveness of interventions and the public health policy and practice implications (2005).  (310 pages)